Stress.
Anxiety.
Anticipation.
These are all emotions
every parent feels when faced with the momentous milestone of potty training.
For obvious reasons parents look forward to this development, perhaps more than
any other. But, it is yet again another
challenging area for folks on the spectrum. Research has shown that individuals with
autism often have significant struggles learning this skill.
This task will
certainly take considerable planning and effort. Gains may be slower and
setbacks are likely, but success is possible. With any child, individual differences play a
key role in the pacing and selection of strategies. But, a basic understanding
of the child’s learning characteristics and the main principles of positive
behavior support can be critical to achieving your goal. Note: Many of the same characteristics that lead children on the spectrum to be extraordinarily picky eaters can also lead them to be resistant to potty training. In particular, sensory issues and anxiety over new or different experiences can be particularly vexing. These issues then can lead to challenging behaviors as the child attempts to escape and avoid the bathroom if he sees this as the cause of his/her anxiety and fear (Click here to further explore those concepts in Part 1 of Picky Eating.)
Another commonality
with picky eating is a feeling of powerlessness over this issue. You cannot
make a child control these bodily functions even if you are quite positive she
has the ability to do so. But keep in
mind that control of bowels and bladder is a somewhat complex function. Most of
us realize a child must have ability to understand that waste belongs in the
toilet, and then be able to connect the sensations he feels with the necessary
steps to make that happen. Effective and
efficient control of elimination requires the maturation of the nerves between
the brain and the sphincter/bladder muscles. Since ASD’s are neurological
disorders resulting in pervasive developmental delays, it can be assumed this
control may be (and probably will be) delayed as well.
It is difficult to tell
by simple observation how neurologically developed one’s child is in this area,
so we have to play detective and take the best steps we can to move forward. As
with all other areas of life for the person on the spectrum, schedules and
routines can become the surest path to independence. Getting a child on a
regular schedule, sometimes called habit training, can get hi very near the
goal of independence and at the very least dramatically reduce the number of
diaper/ pull-ups that get soiled. But habit training requires rigid scheduling; not only trips to the bathroom, but also times and quantities of food and drink (for health and safety, avoid excessive restrictions or pushing more than 8 -10 glasses per day). For some, watching the clock just doesn’t fit their active lifestyle or family dynamics, so it may be better to strive for more naturalistic routines such as going upon waking, before or after meals, leaving or arriving home etc.. Communicating this effectively, as with a visual cue or part of a schedule, is also critical. Facilitate cooperation with the routine by following it with a preferred activity.
Ensuring adequate fiber is also important. Given the challenges so often faced with eating, using fiber supplements, from gummy bears (not the candy) to natural fiber powders added to a favorite shake or smoothie may be the kind of creativity required to ensure they are getting the amount of fiber needed for more regular bowel movements. If constipation is an issue for your child, your challenges will be compounded by the irregularity of experience and the all too common pain and discomfort the child will associate with it.
Immediate success may not result with habit training but your initial goal is to establish familiarity and routine. The results from a regular schedule of meals and fluid intake may take time to translate into regular elimination patters. It is also true that for many, the erratic appetites and eating patterns that have persisted will be a significant obstacle, but again success should not be expected overnight and persistence with maintaining a routine will, over time, help both eating and potty training. It goes without saying that what goes in determines what comes out!
Once you have both
relaxed a bit, it may take a bit of creativity to make the bathroom a safer,
more inviting place – if your child enjoys bath time, maybe during your break
you can begin to play some favorite music (not too raucous if it is before bed
time). Once you are ready to return to the bathroom for elimination, maybe play
a different favorite tune. You don’t want the child expecting his bath just
because he hears his favorite song- but you want him to view the setting as
relaxed and comfortable.
You might need to do
this in stages, in ABA terms you may need to shape his behavior, gradually
getting him comfortable in stages until he is IN the bathroom and ON the
toilet. In addition to the music, offer a few books or whatever it takes to get
him to relax, but not so engaging that he focuses too intensely on the item.
These items can be also a useful bridge for assisting the child to use the
bathroom in new and unfamiliar places.
For many, the seat itself can be a major obstacle. Too cold, hard or
large can make the child fearful of just sitting on the toilet, so consider a
soft seated insert. Offering a foot stool so feet do not dangle can help with
stability, comfort and aids in sphincter control as well.
Remember also that when
teaching the routine, it is necessary to teach all of the steps, in sequence,
ending with hand washing -also a multi-step process that can be aided by the
use of a step by step visual.
A word of caution with
regards to flushing – some children love to flush and this can be a natural
reinforcer for the finished task. Be sure all the other necessary steps have
been completed before she is allowed to flush or inappropriate routines may
easily become established. Others
however, find the noise and swirling water frightening. If this is the case,
structure your routine so that hands are washed and the door is open before the
flush takes place and an immediate escape can be made, but all the necessary
steps have been followed. Remember that what you do for the child now will be
learned, and unlearning it later will be a greater challenge than finding a
solution or teaching an adaptive skill now.
Also – restrain
yourself from rejoicing in your success until the child has fully finished
emptying his bladder or bowels. Shouts of “Hurray!”
can stop the child midstream and lead to accidents a short time later. Too much
enthusiasm can also scare the child if it is too loud and startling, and leading
to refusal or resistance in the future.
While no discussion of
potty training would be complete without mention of sticker charts or some
other reinforcement, it is important to note that rewards only provide
motivation and are ineffective when the necessary skills and neurological
development are not also in place. In addition, making sure the person
understands the connection between completing the task and obtaining the
desired item is critical and not always as obvious as we may think. Finally, they
are only effective if the item is truly desirable. Sticker charts often fail
because stickers are not that exciting for some of us and even if they are
building to a really great reward, the payoff may be too distant and perceived
as too unattainable to be effective.
This is not to say that a reinforcement system should not be used, but
only to caution you to the reasons why they often seem to fail. If you are
confident that motivation is your missing link, but your reward system just
isn’t working, tweak it a bit. Something more immediate –
such as access to a preferred game or activity) might be better than stickers
that build to a big and exciting reward.
While we have only
scratched the surface on a number of issues, the West Virginia Autism Training
Center library has some excellent resources. One of the best on this topic is
Maria Wheeler, M.ED. ‘s Toilet Training
for Individuals with Autism and other Developmental Disabilities. Her book
goes into greater detail than is possible here and WV ATC has multiple copies. If you are struggling with this issue or see
it looming on the horizon, take some
time to develop a plan and prepare yourself for a few setbacks – numerous
factors can contribute to those and should not, in and of themselves, be interpreted as a failure or be cause to
abandon an otherwise well considered plan. As with everything else related to teaching
your child with Autism, patience and persistence mixed with some understanding
and creative problem solving are your keys to solving this puzzle.
Excellent suggestions Bonnie! Great article.
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